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Tough Life for Autistic University Students

University students on the spectrum struggle while there is a lack of available support.

By Chloe Tam

Diagnosed with autism spectrum disorder (ASD), university student Yu, who only reveals her surname, has been struggling with her study and social life. 

“Studying at the university is a huge challenge for me. Learning academic theories itself is easy but making friends is tough, especially for autistic students,” Yu says.

The Year Three student shares that she finds it difficult to handle group projects, and she prefers working alone to avoid clashes with classmates.

“There are many group projects. I am scared of group projects and feel nervous about them, as I do not know how to do division of labour with other students tactfully. Conflicts happen all the time,” Yu says.

“Most people do not understand my situation. To avoid disputes, I stayed away from group projects in the first two years of my study by asking course instructors to let me work alone,” she adds.

Yu says it is difficult for autistic people to interpret the implied meaning of others’ wordings, leading to misunderstanding and conflicts. 

“My emotions are vulnerable to peer influence. I feel extremely guilty if I misunderstand them,” she says.

The student sometimes overreacts to unexpected incidents. 

“A course instructor’s microphone broke one time and made a loud and high-pitched noise. I cried for the whole lesson because of it. I knew it was disturbing but I could not control myself. Once my emotions are triggered, it takes me a while to recover,” she recalls. 

The social work major wants to speak for Special Educational Needs (SEN) students after graduation. She changed her major from food nutrition to social work after her second year of study. 

“I met a good social worker. She accompanied me when I was having a mental breakdown. She also spoke for me when I had a conflict with my teacher. It was a life-saving act. I want to do the same for others too,” she says.

Yu receiving a certificate of appreciation after speaking at a press conference.

A common challenge 

Professor Gary Lam Yu-hin of the Department of Educational Psychology at the Chinese University of Hong Kong (CUHK) has conducted studies about ASD students’ learning difficulties.

“Although ASD students are capable of enrolling into universities, their graduation rate is comparatively lower and their mental health is worse than other students,” Lam says. 

According to the Education Bureau, there were 191 ASD students enrolling in full-time accredited undergraduate or sub-degree programs in Hong Kong.

Lam conducted research on the experiences and needs of Hong Kong university students with ASD from 2021 to 2022. It was funded by the Equal Opportunities Commission and supported by SAHK, a local rehabilitation non-government organisation. 

The study found students faced challenges in learning, social communication, emotional and sensory issues, transition and career prospects, being misunderstood by others, disclosure of ASD or SEN conditions, and varied services for autistic students at different institutions. 

“Autistic students find it difficult to adjust to changes in routines such as switching from physical class to online lessons. It is because experiential learning activities such as live demonstrations cannot be carried out via Zoom. Theories and concepts taught via Zoom are too vague for them to understand,” Lam says.

“Many people stereotype autistic people as bus fanatics who like being alone. Teaching staff are not familiar with the support measures available for autistic students as well. Worse still, discriminative behaviour may cause autistic students to struggle if they should disclose their condition. People who are not informed about autistic students’ condition may also question why special arrangements are given to some of them,” Lam adds.

 Supporting students on the spectrum 

Dr Joanne Wong Chi-yan from SAHK points out that the support for autistic students at tertiary institutions is limited.

“In some schools, there is only one staff in charge of SEN student-related affairs such as the University of Hong Kong, the School of Professional and Continuing Education and Hong Kong Community College. Yet, more and more autistic students are admitted to these institutions,” Wong says. 

Doris Tsui Ue-ting from the Equal Opportunities Commission shares Wong’s view. 

“The resources for SEN students are mainly allocated to acquiring hardwares such as learning facilities and equipment. Very little is offered to help students understand lectures and facilitate teachers to teach,” Tsui says.

“More resources can be deployed for orientation camps so that student committees of the camps can better cater to autistic students’ needs. Peer support is important to autistic students. This does not require a lot of money, but it is very helpful. The key to the problem is to offer people-oriented help and support,” Tsui says. 

Edited by Lesley Lam
Sub-edited by Victoria Fong

Liz Sargent’s Films Dive Into Identity and Family

Filmmaker Liz Sargent shares how her story as a Korean-American adoptee who grew up with ten siblings inspired a work that explores some of her life questions and fears.

By Lilou Margueron

Film writer and director Liz Sargent makes movies inspired from her own life story to explore questions about adoption, family and disability.

Sargent’s latest production, Take Me Home, was released in 2023. It tells a story inspired by her adoptive sister Anna, who was born with a cyst on her brain, leaving her with very short-term memory and various cognitive and physical disabilities.

In the film, Anna is made the main character in a fictional plot in which she needs to learn how to communicate with her sister after their mother’s death.

“I have always been really worried about what will happen to [my sister] when my adoptive parents pass away, and how I get to keep my own independence,” says the filmmaker, who became a co-guardian of her sister when writing the film.

Liz Sargent coaching actors during the shooting of Strangers’ Reunion in Hong Kong (Photo courtesy of Liz Sargent)

“I want to take care of Anna and I think it is an important part of family and human responsibility, but social services in America are confusing and complicated so caregiving can have a hindering impact,” she explains.

Sargent described the film as a learning process for her since she had to figure out how to adapt the filming set to allow her sister to perform—by shortening transitions to maximise the time of acting, and by taking long shots to create a quieter environment and avoid disturbing Anna.

“She learned it, she got it, all we had to do was to give her a little space and have a little bit of patience, and it was possible!” she says.

Liz Sargent and her sister Anna Sargent wearing tee-shirts reading “diffability, we all have different abilities”
(Photo courtesy of Liz Sargent)

Sargent’s work also touches on adoption. The first film she wrote and directed, Strangers’ Reunion which launched in 2019, tells the story of a Korean-American adoptee, Mira, who met her birth mother for the first time in a Hong Kong hostel without a translator.

“Strangers’ Reunion was written as a response to finding my biological mother and figuring out I had three biological siblings,” says the former choreographer, who decided to quit dancing for filmmaking around eleven years ago, with the hope to tell her own story in her work.

“A lot of my movies stem from personal experiences, when I feel something so intensely that I can’t really figure out what it means and I don’t know how to feel about it.”

 “It was really a sort of cathartic experience because watching these two actors perform this dialogue [meeting the birth mother] and thinking deeply about the details of reaction and the layers of emotion they must be feeling was really helpful for me to sort of disconnect myself from the intensity of my feelings around it,” the 43-year-old says.

Growing Up as an Adoptee

Adopted in Korea when she was five-months old, Sargent grew up in a family with eleven children. Among her siblings, six were adopted and five have different kinds of disabilities.

Her adoptive parents’ dream was to have a big family. “My father is an only child and his parents died when he was young so I think that’s part of his love for his family, and for my mother, it just brings her joy,” the filmmaker says.

She has built a good relationship with her adoptive family. With a smile, she recalls their big house in the suburb of Chicago as loud and chaotic, full of kids fighting for attention, where every room was packed and they had big dinners together.

“It was unique but we had nothing to compare it to, so we didn’t think much about it. Several siblings also have disabilities, and we didn’t question that either, it is just a fact that they think differently and have different physical abilities,” she says.

Liz Sargent, sitting in the middle in blue, at around 6 years-old with her siblings.
(Photo courtesy of Liz Sargent)

In Sargent’s family, the fact that she was adopted is always visually clear and talked about. As she did not want to get into a lifelong search for her birth family, she only decided to contact them during the winter of 2018.

“It felt like the right time in life and I wanted to see if it was possible [to meet] before she [my biological mother] dies,” she says.

After a couple of months of extensive research, Sargent managed to ask her birth parents to meet her through her adoption agency, with a possibility of refusal on the other side.

Her birth family quickly got back to her. Among many other unnamable feelings, she remembers being “just totally shocked, totally stressed, feeling a lot of pressure for what that relationship should be”.

“It’s hard to fully be myself when I know my biological parents might have certain expectations of me, and I sort of just want to make them happy.”

Sargent filmed Strangers’ Reunion in Hong Kong just before flying to Busan, South Korea, to meet her birth mother and three siblings.

“I only spent two days with them but there were just so many emotions in those moments, so much fear about what we wanted to tell about ourselves to one another, and so much hope to be loved and to be forgiven,” she says.

“It was complicated because you want to know all the information and all the history but you wonder if you are ready to hear about it, or tell it from their perspective. I am still figuring it out,” she adds.

Continuous Exploration on Family Dynamics

Sargent does not know what will happen to her relationship with her birth family.

“I’d like to [go back] but I still feel a lot of stress around it. I am not sure when is the right time and I do not want them to feel stressed as well. Sometimes I feel that it is not helpful for us to try to build a relationship if it just makes us anxious,” she shares.

Since her adoptive family members require great care, with her disabled sister Anna, ageing parents, and another sister who has borderline personality disorder, she does not feel ready to rekindle her relationship with her birth family yet. 

Liz Sargent with her adoptive parents and siblings. (Photo courtesy of Liz Sargent)

As a filmmaker, she wants to keep working on themes of adoption, family and disability that matter to her.

“These stories are important to me and I am always trying to explore the details and intricacies of the situation through the characters I write. I feel that bringing dimensions to tropes helps inspire audiences to live differently in the world,” she says.

Edited by Charlie Chun
Sub-edited by Charmaine Choi

Paint My City

Hong Kong artists use their brushes to record the city.

By Sunnie Wu

Born and raised in Hong Kong, Elaine Chiu explores her cultural identity by painting local cityscapes.

“I started drawing cityscapes in secondary school. Sham Shui Po, To Kwa Wan and North Point are good spots for urban sketching as they are full of local character,” the local artist says.

Chiu discovers how the city evolves when she practices on-location sketching.

“There are many organic lines and shapes in a street market, especially the overhead wires that make the picture plane look messy. Whereas you can spot repetitive patterns and straight lines in Central’s buildings. It makes me contemplate how people design and shape the city,” Chiu says.

The young artist also explores her cultural roots by painting cityscapes.

Elaine Chiu’s “Plane Over Head”, painted in 2019.
(Photo courtesy of Elaine Chiu)

“Hong Kong is a place of hybridity. You can observe its diverse culture through the neon signs, typography and architectural styles,” the 27-year-old says.

Her painting “Plane Over Head” shows signboards of Thai restaurants and jewellery shops in Kowloon City. The signboards are in different languages and design styles which reflect the city’s cultural diversity.

The painter always uses watercolour in her paintings because it can show both Chinese and Western art styles.

“Watercolour paintings appear Western style when they have a thick, solid texture. But when the watercolour is blurred, it looks like traditional Chinese ink wash painting,” Chiu says.

Other than preserving the heritage and urban identity through paintings, Chiu has also held over 200 street-sketching workshops for the public.

She collaborated with an NGO on a social art campaign called “Street and Seek” from 2018 to 2019. They held workshops in various districts, especially the ones more affected by urban renewal, such as Sham Shui Po and To Kwa Wan.

Elaine Chiu did urban sketching with her students. (Photo courtesy of Elaine Chiu)

Participant Wendy Fung says the campaign helps her better understand the old Hong Kong. She went to Sham Shui Po and Tai Kok Tsui for urban sketching.

“I rarely go to those areas because I work in Central. The workshops taught me the background behind the historical buildings and I felt as I travelled back in time,” Fung says.

She also noticed the city’s unique aesthetics through urban sketching.

“I now pay more attention to the colour tone of Hong Kong buildings. Take tenements as an example, it often has a dull grey tone which brings out the historical traces. I find it very nostalgic,” the recruitment consultant says.

Character designed by Kung based on the idea of Sham Shui Po.
(Photo courtesy of Azu Kung)

Other than portraying Hong Kong’s cityscape, another artist, Azu Kung, tries to present the 18 districts in the city in a lively way. She has created over 110 personifications of Hong Kong districts since 2019.

Kung met people from different districts when she worked as a human resources manager. It inspired her to pay attention to the characteristics shared by people living in the same district.

Azu Kung takes her Sham Shui Po doll to Leung Tim Choppers Factory.
(Photo courtesy of Azu Kung)

To design characters for different Hong Kong districts, Kung first researched the history of the district. Then she does city walks to gather first-hand information on the district such as its atmosphere and the personality of residents.

For example, Chek Lap Kok’s character has a feather-like hairstyle and pilot costume because it was inspired by Hong Kong International Airport located there.

Kung is glad that her artwork encourages Hongkongers to discover more about their home.

“Some secondary school students told me that they gained interest in Hong Kong’s geographical environment because of my artwork. That is why they chose geography as their elective subject,” Kung says.

Professor Anthony Fung Ying-him from the School of Journalism and Communication at the Chinese University of Hong Kong explains why people resonate with cityscape painters.

“Cityscapes are iconic symbols in daily life with a straightforward message, so audiences can easily relate to these artworks,” Fung says.

Edited by Esme Lam
Sub-edited by Karmen Yip

Mon Heritage Revival: Verochod Punthong’s Legacy

Verochod Punthong promotes Mon culture in Thailand through his museum, research, and a historical book to revive Mon heritage.

By Nutcha Hunsanimitkul

For more than 30 years, Verochod Punthong has been trying to let more people learn the history and culture of Mon, an ethnic minority in Thailand that contributes to the history of Southeast Asian countries but has been neglected.

Mon was welcomed by the Thai Monarchy to emigrate and settle down around the central part of Thailand for 200 years. Its customs have been embedded in Thai culture which can be seen in Buddhism, traditional musical instruments, housing style, and even the world-famous cuisine of Thailand.

“Mon brings us these proud cultures. Food like Khao Chae and Karyasand, or musical instruments such as Peepat Mon and Korng Mon are Mon cultures that most native Thai can be related to. But when it comes to Mon history, they barely recognize it,” the half-Thai-half-Mon says.

Verochod was doing the traditional Mon dessert, Karyasand.
(Photo courtesy of Verochod Punthong)

Punthong, 86, is now running the Chompoo Wek Temple Local Museum (พิพิธภัณฑ์พื้นบ้านวัดชมภูเวก) with the hope to shed light on the Mon culture.

The Interior of the Chompoo Wek Temple Local Musuem.
(Photo courtesy of Verochod Punthong)

“Thai historical scholars and Sukhothai University advised me to build the museum and display all Mon folk equipment including cooking tools, clothing, and Buddha statues I found in the temple so it would not be lost and people can come to learn about it,” he says. 

He believes those artifacts are messages from the past to young generations to appreciate their origin more.

“A few bricks from religious architectural ruins can tell us much information about the ages of Mon heritage and its strong relation with Buddhism.”

“All artifacts tell who we are and where we are from. I believe this museum can promote a realization of Mon history and pass down these precious memories to the next generation,” he says. 

Visitors checking out the artifcats inside the Chompoo Wek Temple Local Musuem.
(Photo courtesy of Verochod Punthong)

The first call for his own origin

Restoring the worn-out Chompoo Wek Temple in Central Thailand about 20 years ago was the first calling for Punthong to trace his roots.

“My brother was the abbot of the temple at that time. It was really old and unstable that the monks could not live there. It was not about what I was supposed to do but it was a must, otherwise, it would collapse, ” he says.

Retired from his job as an engineer, he devoted all his time supervising the restoration of the temple. He became more appreciative of the Mon culture and hoped more people would also know more about it.

“Mon is a treasure of our community.”

Sharing some sweet memories of his dating life, Punthong reminds his close bond with Mon culture. 

“I rowed a wherry along the river to meet my wife when we were young. She also loves to cook Kang Matand, a Mon traditional dish, for our family, ” he says with a smile. 

Transportation by a wherry and a connecting livelihood with the river is one of the Mon cultures that is hardly seen in Thailand now.  

Through years of extensive research about Mon history, Punthong has gathered a great amount of evidence that Mon is more than a root of Thai culture but the main force fighting for Thailand in various wars throughout the history of Thailand.

“The scale of the Thai army was really small at the time. Mon people joined the Thai military and helped fight against enemies. Without them, Thailand would not have come this far. It is sad to see these memories of the Mon getting lost in our generation,” he explains. 

Last gift for the youth

The local museum has attracted local schools and tourists from different parts of Thailand to learn about Mon. It also collaborated with the Department of Tourism of Thailand as a tourist attraction spot. 

Opening Ceremony of Chompoo Wek Temple Local Musuem.
(Photo courtesy of Verochod Punthong)

“I gave tours and narrations of the museum to school students and Thai-Mon communities coming from other regions of Thailand. We gained quite satisfied feedback from the public,” he says.

Verochod Punthong giving a museum tour to the visitors.
(Photo courtesy of Verochod Punthong)
Verochod Punthong giving museum tours to students from local schools.
(Photo courtesy of Verochod Punthong)

“I think it is important for them to see the value of ourselves and appreciate it more. It brings self-pride to them. But I am too old now,” he continues.

Turning 86 years old this year,  Punthong’s children remind him to take care of his health. He no longer tells the many interesting stories about the Mon and walks around with students now. Without his presence, many of the activities in the museum are now suspended.

“We have more than enough volunteers to help organize the activity but none of them have the insight into Mon history, ” he says.

Worrying about fake information that devalues Mon history and fewer local children are keen on their own culture, the half-Thai-half-Mon has been devoting his time to writing a Mon historical book, which he regards as “the last gift about the Mon for the younger generation”. 

“I believe people will not repeat mistakes and will become better people by learning history. I hope my book will bring pride to Mon people, ” he says.

Edited by Charmaine Choi
Sub-edited by Esme Lam

ChatGPT Cannot Do All the Homework

When most think ChatGPT can help students do homework and cheat in examinations, it does not work for university students in reality.

By Sean Pan

University student Sam Liao Yuseng has tried using ChatGPT for his Maths coursework, but the AI fails to help him work out the correct answer.

“The latest ChatGPT version can code simple instructions and solve basic Maths equations, but it cannot tackle questions that require specific formulas or methods. I don’t think ChatGPT can do my coursework anytime soon because of its limited ability,” Liao says.

The Melbourne University student says his school has restricted students’ use of ChatGPT.

“We are encouraged to play around with the tool but we cannot use it for our coursework. Our faculty has even changed the examination format from online to handwritten to prevent students from cheating by using ChatGPT,” the computer science major says.

He says ChatGPT is a useful tool for software developers.

“ChatGPT can find mistakes in my codes and debug them. The AI can also generate codes based on the functionality I ask for so it saves me a lot of time learning coding language which I am not familiar with,” the Year Two student says.

University student Sam Liao Yuseng has tried to use ChatGPT for his course work. (Photo courtesy of Sam Liao Yuseng)

Developed by Open AI, ChatGPT is an artificial intelligence chatbot that mimics a human tone for a conversation.

ChatGPT can code, write academic papers, create marketing content, and answer all kinds of questions. Its latest versions GPT-3.5 and GPT-4 were released in November 2022 and in March 2023 respectively.

Another university student Terry Chan Songkun has used ChatGPT to do his coursework.

“ChatGPT is good at summarising articles and brainstorming essay ideas. But it cannot solve challenging Maths questions or analyse quantitative data,” the accounting and finance student at the London School of Economics and Political Science says.

“A few of my classmates used ChatGPT to write an entire academic paper. But ChatGPT is banned at our school so they ended up getting suspended. I will not take such a risk,” he adds.

An example of course work that could not be solved by ChatGPT. (Photo courtesy of Terry Chan Songkun)

College freshman Cynthia Hu Xinyu has stopped using ChatGPT after testing it a few times for essay writing because she does not find the tool helpful.

“ChatGPT has a very formulaic writing style so it cannot write with a personal touch like a human writer does,” the global communication major student says.

The student reporter of Varsity Magazine also finds that ChatGPT cannot produce good news stories.

“AI is prone to existing data biases so its work can hardly be neutral. But good human journalists can identify those biases and try to stay objective,” the student at the Chinese University of Hong Kong (CUHK) says.

“Good news writing requires decent storytelling skills. But ChatGPT currently has very robotic and dull writing so it cannot craft stories in a compelling way. That is why I never use ChatGPT when writing news stories,” she adds. 

“AI is prone to existing data biases so its work can hardly be neutral.”

Professor Fang Kecheng of the School of Journalism and Communication at CUHK encourages his students to use ChatGPT as a tool to improve the quality of their course work, but not to do papers from scratch.

“ChatGPT cannot do literature writing, write research papers or news articles. It can be used for proofreading or polishing articles. It does not have the ability to create original work or express opinions that stand in articles,” he says.

Professor Fang Kecheng from the Chinese University of Hong Kong says AI lacks the ability to create original work. (Photo courtesy of Fang Kecheng)

“ChatGPT cannot do literature writing, write research papers or news articles. It can be used for proofreading or polishing articles. It does not have the ability to create original work or express opinions that stand in articles,” he says.

“Subjects like computer science aim to create codes with higher efficiency and less wastage. ChatGPT can’t do that,” Fang adds.

Edited by Karmen Yip
Sub-edited by Victoria Fong

ChatGPT Cannot Fight Court Cases

Law students have been using ChatGPT to help with their studies but the tool has its limitations.

By Lilac Ye

Law student Adirana Ma* has been using ChatGPT, an artificial intelligence (AI) chatbot, for studying.

“ChatGPT can help me find highlights of case analysis, a journal, and a judgement,” the Year Two student from the City University of Hong Kong says.

“I use ChatGPT to search case analysis by law firms and translate textbooks and judgements by Hong Kong courts from English to Chinese. Unlike Google Translate, which only translates word by word, ChatGPT does translations with logic,” she adds.

ChatGPT is developed by American research laboratory OpenAI. It is designed to respond to text-based queries and generate natural language responses.

“I am taking five classes this semester. I have to read more than 1000 pages on average every week. I cannot finish my work without AI. ChatGPT helps me find the main points in required readings by summarising them so it really saves my time,” the 26-year-old says.

She pays HK$40 (US$5.1) per month for a virtual private network (VPN) to access ChatGPT as the chatbot is not available for internet users in Hong Kong yet. 

“Contract review is part of a lawyer’s work. ChatGPT can check typos and content’s consistency so I think it is possible for AI to take over some work at law firms such as checking mistakes in contracts but it cannot fully replace lawyers,” she says.

“ChatGPT cannot generate arguments and legal advice as there might be legal loopholes. Different arguments are used by lawyers to build cases and arguments for or against cases,” she adds.

Adirana Ma uses ChatGPT to help with her legal studies. (Photo courtesy of Adirana Ma)

Another law student James Zhou* also uses ChatGPT for his studies to save time.

“I use AI for preparing case summaries, polishing articles, and doing legal research,” the City University of Hong Kong student says.

“I was excited when ChatGPT was launched because I thought it could help me with my coursework. But it turns out I have to cross-check answers generated by AI. It does not save much of my time as I expected,” the Year Two student adds.

“I once used ChatGPT to find references for a case, but articles and laws listed in the finding results do not even exist. ChatGPT’s answers are not fully backed by real cases in its database,” he recalls.

Zhou says totally relying on the AI chatbot is “a waste of time”.

“It cannot help you with its reasoning, legal rules and logic,” Zhou says.

James Zhou has used ChatGPT for legal research. (Photo courtesy of James Zhou)

Associate professor Stuart Hargreaves at the Chinese University of Hong Kong’s Faculty of Law says that the use of AI as a study tool is inevitable.

“My concern is largely about whether students will use it appropriately as a tool, or whether they believe it can entirely replace their own need to work. The latter is a dangerous path for them to go down, since they are basically admitting they have no value to add to the AI’s output,” he says.

He thinks the possibility of AI replacing lawyers’ duties depends on how advanced it becomes.

“It is likely for AI to replace much of the document review work and low-level drafting that is the preserve of paralegals and junior solicitors,” he says.

“AI will fundamentally change all kinds of knowledge work, including the study and practice of law. But I think it is hard to predict the exact form of change at this stage,” he adds.

*Names changed at interviewees’ requests.

Edited by Victoria Fong
Sub-edited by Phoebe Chu

An Ark to Save the Planet

Join Jenny Quinton on a journey to Ark Eden in Mui Wo, where permaculture, organic farming, and environmental protection are the focus for a sustainable future.

By Lilou Margueron

Former primary school teacher Jenny Quinton is running a permaculture and eco-education centre in a remote site in Mui Wo where she spreads messages about environmental protection.

“Teaching about the environment in the classroom is not effective. If you are going to talk about the environment, you really need to be in the environment,” she explains.

Quinton applies this philosophy to the holiday camps she organises for children, where they can learn about the environment while doing various activities in nature.

“The parents realised their children are pretty deprived here in Hong Kong. They need to get outside.”

The project designer from England, who is in her 50s, hopes that her eco-education centre can also reach out to grown-ups whom she has met through various workshops, permaculture classes, or wellness activities such as yoga, dance and qigong—a practice based on Chinese medicine principles involving meditation, body exercises and controlled breathing.

Quinton also organises other activities such as organic farming, composting, waste management, ecological building and ecological restoration.

“We have teachers and students who usually want to educate themselves on ecology. We have companies who want their organisations to become more eco-friendly or do some services,” Quinton explains. 

Reaching the site, visitors are welcomed by farming spaces inspired by permaculture, a term derived from “permanent agriculture”, which refers to systems of agricultural growth designed to be sustainable and self-sufficient.

Farming spaces in Ark Eden

By applying permaculture ethics of earth care, people care and fair share, Quinton hopes that the centre she has now been running for 17 years can inspire people to care and respect all living creatures.

“We are saving the planet!” she says cheerfully, adding that Hong Kong needs more places like Ark Eden.

Starting from Scratch

The story of Ark-Eden began when Quinton landed in Hong Kong in 1989, on a backpacking trip with her partner, the father of her children. They discovered Lantau after a few weeks and fell in love with it.

They found a house which is about half an hour walk away from Mui Wo ferry pier. She is still living at the site, which is also the current site of Ark Eden.

In her first few years in Hong Kong, Quinton worked as a primary school teacher.

Witnessing fires in the hills started by grave sweepers every year, she joined green associations and has so far planted 37,000 trees, mostly in Lantau island.

In 2004, the Hong Kong government released a Concept Plan to develop Lantau island, including proposals to build a golf course, a logistics park, a theme park, a racecourse, and a spa.

The plan was heavily criticised by environmentalists who feared a negative impact on the island’s conservation. Moreover, local residents worried that it would only benefit overseas tourists and developers.

Quinton and her friends, who had alternative ideas about the island’s future, teamed up and conceived a blueprint of Ark Eden, which was originally designed to be a huge environmental centre in Mui Wo.

When her friend Neil Mc Laughlin, the architect of the project, died from a brain tumour, Quinton promised him she would bring the idea to fruition.

But starting the project from scratch was not easy. Also, she was a single mom at the time.

At first, she thought of creating Ark Eden in an abandoned rural school in Wo Tin village, but was refused the place due to her foreign identity.

“I went to the beach, and I cried for an hour. And I beat the sand. And then I remembered I have a house. I’ll use my house,” she recalls.

There is no developed route to get to Ark Eden, visitors have to hike for half an hour through a forest.

One of the entrances of Ark Eden

“I never imagined anyone would come this far, because everyone just thinks you need somewhere that is convenient. But the location is actually extremely good for everyone, especially for the kids, walking up and down…they get fit!” Quinton says.

To kickstart the project, Quinton relied on a network of experts affiliated with the Hong Kong green groups she was part of.

“I did not know how to do organic farming, so I invited them and saw what they did, and I learnt the skills through observation,” she says.

When Ark Eden started running in 2006, Quinton had to use her living room as a classroom, where sometimes up to thirty children would pile up to learn about the environment. 

Thinking Lantau’s Future

Quinton spends a lot of time thinking about Lantau’s future in light of the government’s development plans for the island.

The controversial Lantau Tomorrow Vision, which plans to build 1,700 hectares of artificial islands along the eastern coast of Lantau, is expected to start in 2026.

In a recent talk she held at a monthly meeting for people interested in environment-related matters, the former teacher presented a plan she wrote for a greener Greater Bay Area.

For her, it all depends on three pillars: environmental protection, eco-education, and regenerative tourism.

“Hong Kong is just this amazing city that is to be treasured, particularly Lantau and its landscape. It is an incredible place and the natural resources are undervalued,”

She hopes that Hong Kong can abandon the “old-fashioned, money is everything mentality” to focus on the long-term needs of younger generations.

“I think if you deeply care for children, then you have to care for the environment. Otherwise, that is really cruel for them,” she says.

Edited by Charlie Chun
Sub-edited by Charmaine Choi

Dying at Home

Some patients opt for palliative treatment and return home during their final stages of life.

By Charlotte Wu

Home death service provider Chen Pui-hing learned what a good death is from families that he has helped.

“A good death is a sense of comfort and security that can only be provided by dear ones, not medical equipment,” the 29-year-old funeral director says.

“My main work is organizing funerals. I visit patients who want to pass away at home [before their death]. Then I clean their bodies and transport them to the mortuary when they are gone,” Chen says.

Chen also invites family members to do some tasks such as applying face cream, combing hair, and putting on socks for the ones who passed away at home.

“It is not necessary for family members to participate in the cleaning process. But I know they want to do something for their beloved ones in their last moments. Showing them the cleaning process can assure them their loved ones are treated with care and cautiousness,” the Lingnan University graduate who majored in philosophy says.

“I am all ears when I do the cleaning. Families love sharing memories of their loved ones with me such as having dim sum at restaurants and stories about their neighbors,” he says.

Home death is a form of end-of-life care that allows terminally ill patients who refuse to receive interventional treatments to spend their final days in their homes, rather than passing away in a hospital or hospice facility.

Patients who opt for home death services are discharged from hospitals after evaluation. Doctors visit these patients every 14 days until they pass away.

To avoid startling the neighbors, Chen dresses the departed in casual clothing with masks, glasses, and hats as if they are going to hospitals for a medical appointment. A wheelchair is used when transporting the body to a seven-seater car which will take them to the mortuary.

Chen believes the lack of public education is the biggest challenge when practicing home death service in Hong Kong.

“The public has misconceptions towards home death. Some families worry the transporting process might involve many service helpers and large-size equipment. They want to do it in a subtle way,” he says.

“Some life-and-death associations are providing services in a traditional manner such as transporting dead bodies to the funeral parlor with a stretcher bed, which is completely unnecessary,” he adds.

“Home death is a hard decision to make. It will be easier for family members to take care of the patient if they are placed in the hospital. Home death means that family members witness the pain their loved ones endure and must always cater to their needs before they are gone.”

Three in every ten people want to pass away at home, according to a telephone survey of 1,067 Hong Kong people conducted by the Chinese University of Hong Kong in 2017.

But only 5.5 per cent of Hong Kong people died at home in 2019 as reported by the Census and Statistics Department.

Chan Muk-kwong, the Chief Operation Officer of the Society for the Promotion of Hospice Care (SPHC) says the organization receives about 12 home death cases per year before the pandemic. Over 80 per cent of them are aged over 65.

“More middle-class people are informed about home death. They are more educated and open-minded. However, it is still not a popular choice among grassroots because the service is costly,” Chan says.

The NGO provides palliative care services to patients with life-limiting illnesses, such as cancers or heart failure. They started providing home death services in 2017.

The group charges grassroots patients HK $600 (US $74.4)  for each visit, including Comprehensive Social Security Assistance recipients, subdivided housing and public estate residents. Those who are not on welfare have to pay HK $4,800 (US $611.5).

An average of HK $12,000 (US $1,528.7) for cleaning and transportation services is charged for all kinds of patients.

Located in Sha Tin, the Jockey Club Home for Hospice offers 30 self-contained ensuites for palliative patients. 
(Photo courtesy of Society for the Promotion of Hospice Care)

Chan observes most patients in Hong Kong now receive short-term treatments and surgeries for severe injuries including heart attack and stroke. Palliative care is not seen as an important medical speciality in Hong Kong.

He suggests three ways for the government to meet the needs of population growth and develop the service.

“Manpower training is essential to develop it [palliative care] into a speciality. Each hospital should establish a hospice care department and wards to serve such patients. Promotion should be done in grassroots communities and elderly centers,” he says.

Hong Kong is the first Asian city to accept palliative care as a medical specialty. But home death cases remain low in the city.

The “Strategic Service Framework for Palliative Care” was developed by the Hospital Authority in 2017 to guide the development of palliative care services in the coming five to ten years.

In a written response to queries from Varsity, the Hospital Authority says they will regularly review the demand for services according to population growth, advancement of medical technology, and healthcare manpower to better meet the needs of patients.

The Hospital Authority aims to strengthen the specialist palliative consultative service in hospitals and train nursing staff to support terminally-ill patients beyond palliative care settings.

Palliative care outpatient and day services are provided in phases. Home care services are also provided via nurse visits, according to the authority.

Edited by Charlie Chun
Sub-edited by Esme Lam


A Rare Disease with No Cure

By Yilie Lo

For 44-year-old Alan Ho Chun-lun, simple things in life, such as walking and talking, can become challenges. After a year since his diagnosis, he still suffers from occasional joint pain caused by a rare disease called Adult-Onset Still’s Disease (AOSD).

Ho lost his eyesight and has difficulty walking and speaking after suffering from a cardiac arrest and stroke. In August 2022, he resigned from his job as a secondary school English teacher.

“I used to make HK$75,620 every month before I got AOSD. Now, I have to live on a monthly disability allowance of HK$4,010 from the government. Our whole family is living off my savings. My elder kid is just 9 years old and my wife quitted her job to take care of me full-time,’ Ho, who had taught for 20 years, says.

In November 2021, the former teacher was hospitalized after suffering from two weeks of recurrent fevers. He experienced intermittent loss of consciousness, a nine-minute cardiac arrest, and a stroke.

It took doctors nearly a month to make a correct diagnosis. Ho points out that it was because no specific test is available to detect the disease.

“The doctors could only use the method of exclusion. They gave me medications according to the suspected causes and observed the effectiveness of the medicines on me,” Ho says.

 “I sought consultation from medical experts of different specialties. My sample was also sent to Germany for examination,” he adds.

According to the National Organization for Rare Disorders, AOSD is a rare inflammatory disorder which affects between one and 34 people per million. Symptoms vary from high and spiking fevers, joint pain, to others associated with systemic inflammatory diseases, such as having salmon-pink rashes.

Candy*, 41, is one of the few in this city whose story echoes with Ho’s. She was diagnosed with AOSD in 2013.

She suffered from recurrent fevers for three months before she was diagnosed.

The AOSD patient has been running a Facebook page, “Aosd-成人史迪爾氏症 Adult onset still disease” since 2017, sharing information about AOSD and her personal experience battling the illness.

“AOSD is so rare that information about it is very limited. When I was diagnosed with the disease, I felt lost and helpless,” she says.

Providing information on various rare diseases, Rare Disease Hong Kong (RDHK) is the largest support group for rare disease patients in Hong Kong. However, information about AOSD cannot be found on its website. This means that in Hong Kong, no AOSD patients, or their families, have ever registered to be a member of the support group.

Information about AOSD cannot be found on the website of Rare Disease Hong Kong.

“I hope it (my Facebook page) can serve as a platform to build a community of AOSD patients and let them know that they’re not alone,” Candy says.

“AOSD is not a disease with obvious symptoms. It takes a very long time for doctors to make an accurate diagnosis. It is very stressful for patients when they do not know what is happening. I just hope patients can find support from my Facebook page,” Candy adds.

Over the years, she has gained over 250 followers, including AOSD patients from Hong Kong and Taiwan. Her readers exchange their first-hand experiences and encourage one another in the comment sections of her page. They also discuss information about the disease, such as the effectiveness of the medications that they are taking.

Comments under one of Candy’s Facebook page posts.

In the 2022 Policy Address, the government announced that a database for individual uncommon disorders would be established. A cross-border collaboration between China’s national collaborative network for rare disease and the Hong Kong Genome Institute would also be introduced.

Dr. David Lam Tzit-yuen, the Legislative Council member for the Medical and Health Services Constituencies, believes that the Mainland has an advantage over Hong Kong in treating and diagnosing rare diseases.

“It is difficult for local healthcare professionals to recognize a case of AOSD because they lack the experience of diagnosing and treating rare disease patients,” Lam says.

According to him, the Mainland has a larger database of patient information. It is easier for doctors there to find similar rare disease cases, resulting in a higher efficiency of diagnoses.

“In our current public health system, a centralized database of recorded rare disease cases is not yet established. Patients might be referred to different specialists according to their symptoms, so it is a long journey before the correct diagnosis is reached,” he adds.

“The number of rare disease patients and the variety of rare diseases (in the Mainland) are way more than Hong Kong’s. Their health professionals are more experienced. Our system and local health professionals can learn from them through the collaboration,” Lam says.

*Name changed at interviewee’s request.

Edited by Lesley Lam
Sub-edited by Victoria Fong

To Learn, To Respect, To Love

School principal Yuon Fuk-lung shares his education philosophy and future insights.

By Jasmine Lam

Secondary school principal Yuon Fuk-lung wakes up at 5 a.m. every morning, spends two hours commuting from Fo Tan to Tung Chung, then to Tai O to reach the Buddhist Fat Ho Memorial College at 7:30 a.m. to greet his students. 

“If I don’t love them, how can I come back every single day at 7:30 a.m.? The driving force is love. Students are my sons and daughters,” says Yuon, who has been teaching at the College for 13 years. 

He also shares his love with two dogs, a Bernese Mountain called Big Ben, and a Border Collie called Panda. Yuon uses the dogs to teach students to be respectful. 

“My education philosophy is respect. If students learn to be responsible, they will be responsible parents in the future. If they learn to respect animals, they will respect humans and nature,” Yuon says.

“Before teaching students how to study, you need to help foster their love for school first,” the principal adds. 

To motivate students to go to school, Yuon placed pianos all over the campus and set up a gym that is open to all students. 

Yuon Fuk-lung with his students.

The principal is pleased to see students play the piano or do training at the school gym during his lunchtime strolls around the school.

Yuon wants to help students reach their full potential on top of academic development, hence he encourages students to develop their talents in other activities such as rugby, cycling, and hiking. 

“Instead of being involved in the rat race in academic excellence against other top tier schools, we focus on excelling in niche sports and make it our strength,” Yuon says.

His hard work paid off. A student won the 2021-2022 A.S. Watson Group in HK Students Sports Outstanding Performance Award in Rugby. Another student won the 2021-2022 Athletes of the Year Award.  

In 2019, he cycled with four students and one teacher from Hong Kong to Beijing in 31 days to raise funds for orphans whose parents died of AIDS. 

“My inner thigh kept bleeding during the trip,” Yuon says. But the adventure strengthened his bonding with the students and cultivated their confidence. 

How successful we are is not determined by how capable we are, but how persistent we are. Many children scored well in the DSE exam, but only five students from Hong Kong stepped out and cycled to Beijing,” he adds.

Yuon Fuk-lung talks to students during lunchtime.

How He Got Started 

Before he joined the school, Yuon was a professor teaching sociology at the University of Hong Kong, the Chinese University of Hong Kong, and the City University of Hong Kong for over 20 years in total. 

He gave up his career as a university professor to serve as a secondary school principal in this rural district in 2009.

“I want to go to the lowest band school to help children,” the principal says.

Yuon did not expect to work at the school for so long when he took the job. Commuting time was one of the main concerns. But he changed his mind after he saw the plight of the disadvantaged. 

“My wife has been offered promising business opportunities. My son and daughter have excelled academically, so I can continue working at the secondary school without strain,” Yuon says.

“I was a scholar sitting in the office, reading books and enjoying coffee. I hated sweating. But I realised I cannot help the students if I simply apply teaching methods I used at universities to this school,” Yuon says.

He has been participating in Oxfam Trailwalker for over 10 years as he believes that sports and willpower can change students’ learning attitudes.

“Man can be destroyed, but not defeated,” he says.

His Future Plan

The principal plans to retire before turning 65 and is now looking for a successor to continue his education philosophy.

“Educators should focus on the students themselves more than the academic results and teach students in accordance with their aptitude,” the school principal says.

After retiring, Yuon says he might pursue a Ph.D. degree, explore the field of Chinese medicine, or write a book.  He also wants to spend more time with his family.

“Every kid is born talented and smart, just that they come from different social backgrounds and require different efforts to realise their potentials,” he adds.

Sub-edited by Yap Ying Ye